Look Up, Look Way Up

Photo by Arthur Nelson Trever, 1933 Chicago World's Fair.

A Divorce Followed by Breast Cancer

by

Lois Trever

Janet and her husband decided to divorce after their two years in the Philippines; it was a very painful decision.  A short time after Janet and the children returned, she called to say there was some suspicion of breast cancer.  Not long after that, she asked me to come take care of the children during her hospitalization.

There were lists on the side of the refrigerator telling me how to cope.  As always, Janet had built a large army of true friends who were ready to help.  When Janet came home, folks brought food--one big man had, himself, baked two pies.  The refrigerator and cupboards were well stocked.

It was a very pretty house, rented from a minister.  There were swings in the backward, roller skates, swimming lessons on the calendar.  Both children, especially Sarah, were eager to show me a beautiful cemetery just back of the back yard.  We three walked there several times every day.  Sarah, will of the wisp as she was, would dance and skip ahead around a corner and disappear only to be found in a little while, full length on her back on a tombstone, long blond hair draped over the stone.  Andy was more likely to be riding his two wheeler bike off on an intersecting lane.  I don't know if I am imparting the sweet but eerie circumstances as they affected me.

The time for Janet's breast surgery arrived quickly.  The children went off for a day at a friends house.  I drove to the hospital.  When Janet came back from surgery there came her wonderful friends to be sure she could faintly hear spiritual music.  They came in many numbers, each with something comforting to bring and to do.  I found myself at the door of the room and decided to go out and walk a bit in the fresh air.  As I walked tears broke through, quickly becoming an uncontrollable torrent.  I climbed into the car but then came more tears of helplessness and sorrow.  I remembered I was near the office of Janet's favorite friends Meryl Tullis, a motherly figure in Janet's life. 

Meryl came to the door, invited me in and brought coll water and soda crackers.  I felt her concern and understanding.  As the weakening sobs continued she said, "Lois, look up, look way up."  I did so and realized that my uncontrollable tears had stopped.  There is a magic made up of actual knowledge of anatomy that stops the tears and sadness when we look up, "way up," as Meryl said.  I have often used Meryl's magic to help me.

Before I returned home Janet and I had a few happy times together, including times all four of us walked or rode bicycles in the quiet cemetery, visited by no one but us.

Sarah, Janet, Andy during that terrible/wonderful year.

Odd, my own Good Year shot last month over Daytona.  Guess its in my blood.

Strawberry Friday: Tree

Tree

I am no longer afraid of mirrors where I see the sign of the Amazon,

the one who shoots arrows.

There was a fine line across my chest where a knife entered,

but now a branch winds about the scar and travels from arm to heart.

Green leaves cover the branch, grapes hang there and a bird appears.

What grows in me now is vital and does not cause me harm.

I think the bird is singing.

I have relinquished some of the scars.

I have designed my chest with care given to an illuminated manuscript.

I am no longer ashamed to make love.

Love is a battle I can win.

I have a body of a warrior who does not kill or wound.

On the book of my body, I have permanently inscribed a tree.

Mom writes: Someone in AVANTA gave me a great poster picture of a bare breasted woman who had apparently had a mastectomy and then a beautiful vine tattooed all across her scars.  I loved it and hung it in my bedroom.  Sometime, over the years, I would hear my kids explaining my strange collection of art to their friends while they were passing through my room.

[yes, I can confirm the poster was hung prominently and proudly, and took some getting used to]


Photograph by Halla Hammid, words by Deena Metzger, poster design by Shiela Levrant de Bretteville.
Image credit: Deena Metzger, as viewed on http://www.fawi.net/BC/heroines.html
Text viewed at http://www.donnellycolt.com/catalog/humrightposter.html

Chapter 5: I Am Woman Hear Me Roar

Mom says, "I went around the house the next week singing Helen Reddy's "I Am Woman, Hear Me Roar."  What follows I find hard to believe and understand.  Maybe others can empathize.

In her own words:

Somehow part of it was exhilarating.  I began a water aerobic exercise program at the YMCA just days out of the hospital.  The dressing flowed out of the top of the bathing suit as I swam with my head above water.  Two weeks out of the hospital I began the masters program and a counseling internship placement in nearby school systems.  I felt I had no more time to give the medical world.  I did very well in my classes that were in the evening; the girl next door would come over to babysit my school-aged children.  Being in a counseling milieu is a great place to be during a major life transition, and I felt I handled all of my issues up front the best I knew how.

Now this I sadly believe, and so timely to our own time:

I did not pick up a dating and social life afterwards, and it was clear that being in the midst of a divorce during a mastectomy was a tricky process in terms of self esteem and body image.  I had to stop the divorce proceeding because I was not insurable without the military, and could only begin it again after I had been hired the next year as a school counselor. 

Chapter 5: Lightening



 Lightening by Ramona Handel

"Lightening won't strike in the same place twice.  Janet won't have cancer.  If I think positive, it won't happen."

These were the thoughts repeating through my mind like a mantra as Janet and I waited for her biopsy results.

WRONG!  Cancer can strike twice or more in the same person and positive thinking isn't enough to change the diagnosis.

Janet's Air Force doctor advised a radical mastectomy.  I knew a modified radical mastectomy was just as effective and less disfiguring with fewer medical problems later.  I also believe the military medical system was behind the private medical system in the "latest treatments" available.

Get another consult, outside the military.

The diagnosis was the same, the surgery was modified, and performed by one of the best surgeons available in the community.  It was well known in the private medical community that he had no personal support to offer a patient but instead had great surgeon's hands.

As I visited Janet in the hospital during her recovery from surgery, a tape recorder playing chanting in the background, little did I know I would walk a similar path in the near future.

January 1981 I saw the same doctor for a lump on my breast.  He examined me, my mammogram was negative, so was the diagnosis.  I skipped out of his office into the sunshine of that crisp Dakota day with feelings of joy and gratitude.  I did not follow my own advice and get a second opinion, after all the news was good and what I wanted to hear.  Why would I ask for a different diagnosis?  I was making a mistake.

My focus was elsewhere.  I had been divorced for a year now and still adjusting to such a huge shift in our family.  I was beginning a life long process of coming out as a lesbian and staying sober.  My immune system was weakened from high stress and in retrospect I was a candidate for cancer or any stress related illness.

Eleven months later a needle biopsy of the lump showed cancer.  I had a mastectomy and my recovery was enhanced by the love and support of friends and family.  Two months before I surgery I had met and fallen in love while on a trip to Mexico.  That was a strong healing factor through my surgery, recovery, and life.  Love has a way of making life instantly more previous, as does cancer.

After the surgery and three months of chemotherapy the cancer has stayed in remission.  Not because I have made great efforts to avoid carcinogenic substances.  I eat anything and quit smoking many times each year.  In that sense I am a terrible gambler and most definitely addicted.

Cancer has been a challenge and I have been more challenged by accepting my homosexuality, accepting my parents' nonacceptance of my sexual orientation, and the resulting periods of depression and despair.  I believe I have learned to cope in better ways and the despair is in the past.

My family has come to a form of silent acceptance in sixteen years and although they do not talk about my orientation I occasionally say something about a gay or lesbian friend and there is obvious discomfort and a change in subject.  We have stopped fighting over the issue that should be a non-issue in a healthier system.

My sons are of another generation.  My younger son has come out about his lesbian mother to his friends and has talked about how difficult that is.  My older son talks freely with me about his homophobia and that he can't tell anyone about "it."

I think it is not my faith that has carried me thus far but rather the caring of friends, lovers, and family.

What I am grateful for was best said by Yeats.  "Think where man's glory most begins and ends and say my glory was, I had such friends."

Chapter 5: The Paprika Pixie - Round 2 Begins

I'm going to skip ahead here.  The important thing to know is that at then end of Chapter 4 mom is feeling like a top, brand-new VW model fresh off the factory floor.  She's got her man, her children, her purpose, and her spiritual quest.  A page into Chapter 5, she feels like this:

My Body Looks Like Our Beat-up Old V.W. Bug
[she writes in pen below "But I'm still running"]

In Mom's own words:

I felt a lump in my breast while taking a shower soon after we settled into Rapid City, and I called the base medical hospital that still covered me until the divorce would be complete in the next few months.  They answered that it would take a long time for a new patient appointment, so I dropped the wildcard of having had terminal cancer as a child, and got an immediate appointment that day.  I was smiling to myself how clever I was to have learned how to work the system.

I went in for the appointment, had a biopsy the next day.  As I stayed over night the surgeon came to talk about how it was undoubtedly benign from its type, and we talked as two colleagues while I described what I had done for the military medical group in the Philippine Islands.  The next day, as my friend Ramona came to pick me up, I was taken completely by surprise with the news of the lab report of cancer.  My friend Ramona was picking me up; she and her radiologist husband helped set me up with consults in the Rapid City medical community once the young military surgeon said he would do a radical mastectomy immediately because that was the surgery he knew best.  My friend Ramona, who was picking me up, made an intervention at this point.  She recommended getting other medical opinions ASAP.

The surgeon I chose found that the medullary carcinoma was not in any of my lymph nodes and didn't require follow-up treatment.  So, I again felt that the ordeal was over and probably a by-product of the divorce and living in a foreign country under immense tension for the last two years.

After the surgery I came home and looked at myself in the bathroom mirror without the bandages on.  I had staple marks across the left side of my chest where a breast had been.  I was turned-off by my appearance, but I had two saving thoughts.  One was that I looked like our beat-up old Volkswagen bug that we drove for years [affectionately named the Paprika Pixie].  It, too, had been scarred, survived many close calls, looked like a mushed aluminum can at times.  But this vehicle of my body was still getting me where I wanted to go, still delivering me to what came next.